While data on the health of people with disabilities have improved, specific data on people with intellectual and developmental disabilities (IDD) is still lacking. Challenges in identifying the population with IDD in national data means that available data does not adequately describe the prevalence and health needs of people with IDD.
In 2002, the Surgeon General’s report called for improved health data for people with IDD. In 2009, the challenge was accepted by agencies of the U.S. Department of Health and Human Services, which aimed to develop a “road map,” a plan for improving national health data.
Hosted by AAIDD’s Research Interest Network, this webinar will provide an update on the status of improved data on health of people with IDD and ask for input on the next road map.
Participants may wish to review these background documents in advance:
- Learning More About Health of People with Intellectual and Developmental Disabilities: An Easy Read Summary of Two Recent Reports from ACL
- A special issue of Intellectual and Developmental Disabilities on health surveillance of people with IDD